External Hearts

As parents of special needs children,

We  have to learn to stand back,

To let our lovely ones,

Learn to begin to climb their own walls.

Yet this is so much easier said,

Than it ever will be done.

For having a child with Autism,

Is like living a life,

With your heart,

Constantly beating,

Outside of the safety,

Of your chest.

We are always so emotionally exposed.

No matter how strong we think we are,

Just a few unkind words,

Uttered toward or about our child,

Can pierce us in all of our softest places,

In ways,

That others may never,

Understand.

Perhaps this is why every barb,

Whether intentional or otherwise,

Leaves it’s mark.

So please understand that it’s hard for us,

All of this stepping back,

And letting go,

For our children are not just,

 A part of us,

They are,

Our very,

Hearts.

 

seventhvoice:

Fantastic blog post.

Originally posted on I choose how I will spend the rest of my life:

Here is today’s email.

To             The Citizens of the United States of America
From      Her Sovereign Majesty Queen Elizabeth II,
Subject  Greetings.

In light of your immediate failure to financially manage yourselves and also in recent years your tendency to elect incompetent Presidents of the USA and therefore not able to govern yourselves, we hereby give notice of the revocation of your independence, effective immediately. (You should look up ‘revocation’ in the Oxford English Dictionary.)

Her Sovereign Majesty Queen Elizabeth II will resume monarchical duties over all states, commonwealths, and territories (except Kansas, which she does not fancy).

Your new Prime Minister, David Cameron, will appoint a Governor for America without the need for further elections.

Congress and the Senate will be disbanded.  A questionnaire may be circulated sometime next year to determine whether any of you noticed.

To aid in the transition to a British Crown dependency, the…

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Special Discrimination

Television content rating systems

My son no longer finds safety,

In your heavily sanctioned,

Familiarity,

He longs to break free of your rulings,

Designed as they are,

For small-minded children,

And not for young adults,

With thoughts and desires of their own,

Disabilities or no,

My son is a young man of clarity,

With hopes and goals,

And dreams of his own,

Why must you seek to contain him?

Isn’t it your job to help him to grow?

I give you his days in the trust,

That you will honor your obligations,

How is ignoring his voice when he speaks it,

Upholding your charter to promote,

Understanding, support and humanity?

When you stop becoming part of the solution,

You inevitably become part of the problem,

My son deserves better than being trapped,

In just another endless version,

Of educational  bureaucracy,

If he’s smart enough to know,

That the way you are treating him isn’t right,

Then he’s smart enough to grow,

And walk well beyond your light.

So please be advised that we will not be beholden,

To yours or anyone elses,

‘Well meaning’ forms,

Of  ‘special’ discrimination.