As the parent of a child with autism I don’t need a pat on the back for all that I do.
Nor do I need to be placated with the odd carers lunch.
I don’t need to go to workshops every week,
Or wear a gold name badge to tell me I’m important.
I don’t need to be invited to meetings
To serve as the token parent of a child with a diffability
Just to make you look good.
Chances are I’ll be far too busy looking after my own son ,
To attend your pretense of a meeting.
But then again,
If you really had any understanding of the true issues,
That carer’s face
Then you’d already know that
Or perhaps the fact that we are all to busy,
Filling our days with the things,
That need to be done,
Instead of discussing the ways,
In which you think they should be done,
Is exactly what you are counting on?
So you can continue to conjure up,
Your stealth legislation.
Either way I don’t need to be the only person in the room not being paid,
To sit through yet another round of your dead-end discussions,
That so skillfully fail to address every real issue,
When it comes to the idea of disability reform.
So let me make this clearer for you,
I don’t need to attend carer’s workshops,
I don’t need someone condescendingly telling me that I need to take care of myself,
Whilst simultaneously denying me the right to have my ‘care’ valued at a rate,
That would be equivalent to a living wage,
I don’t need any more bureaucratic solutions,
To what is in essence, a very human condition,
So please stop waving your over-designed justifications,
And compulsive needs,
For economic rationalisation at me.
Let me give you some economic rationalisation of my own,
Carer‘s save tax payers billions of dollars every year,
Given that cost benefit analysis,
Are you seriously going to try to tell me,
That this country can’t afford to pay carer’s,
Even so much as a sub-standard wage,
For all of the work that they do?
And while you’re mulling that one over ,
I have another list for you,
It’s called ‘The things that I need’.
I need you to pull your head out the sand,
To stand beside me,
I need you to make a sincere commitment,
Toward fulfilling your obligations,
In securing the unfailing provisions,
Including all of the forms of assistance,
That my son may need,
To respectfully be,
In the best,
Most humanly honorable way possible.
This means doing more than just standing by,
As policy makers turn what once was a hard-fought campaign for equality,
Into a maybe we should change the name of this pony,
And then lets pop in a few more vote winning extras,
Into the mix,
Like Work Cover Assistance,
This is meant to be the NDIS,
Not a free for all for anyone who might get injured at work.
Can you just try to remember how this reform all started out?
And the people whom it’s meant to represent.
- Support family carers says minister (bbc.co.uk)
- Caring is a love story (megbarclay.wordpress.com)
- 1 in 8 People: Could it Be You? (carefreecarers.wordpress.com)
- The NDIS: A diamond in the political dirt (australiantimes.co.uk)
- So whats in a name you may well ask? Well everything if it denotes dependence instead of independence. (seventhvoice.wordpress.com)
- NDIS: rights-based paradigm shift or same old charity? (abc.net.au)
- House of Reps passes NDIS bill (news.theage.com.au)
- DisabilityCare: What’s in a name? (abc.net.au)